A face for Picasso : coming of age with Crouzon syndrome /
Henley, Ariel, 1991-
A face for Picasso : coming of age with Crouzon syndrome / Coming of age with Crouzon syndrome Ariel Henley. - First edition. - 378 pages ; 22 cm
Includes bibliographical references.
"A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"-- At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket
Ages 12-18 Farrar Straus Giroux Books for Young Readers. Grades 10-12 Farrar Straus Giroux Books for Young Readers.
Schneider Family Honor Book, Teen, 2022
9780374314071 0374314071
2020053393
GBC1J9231 bnb
020407219 Uk
Henley, Ariel, 1991- --Health--Juvenile literature.
Henley, Ariel, 1991- --Health.
Craniofacial dysostosis--Patients--Biography--Juvenile literature.
Craniofacial dysostosis--Patients--Biography.
Autobiographies.
A face for Picasso : coming of age with Crouzon syndrome / Coming of age with Crouzon syndrome Ariel Henley. - First edition. - 378 pages ; 22 cm
Includes bibliographical references.
"A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"-- At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket
Ages 12-18 Farrar Straus Giroux Books for Young Readers. Grades 10-12 Farrar Straus Giroux Books for Young Readers.
Schneider Family Honor Book, Teen, 2022
9780374314071 0374314071
2020053393
GBC1J9231 bnb
020407219 Uk
Henley, Ariel, 1991- --Health--Juvenile literature.
Henley, Ariel, 1991- --Health.
Craniofacial dysostosis--Patients--Biography--Juvenile literature.
Craniofacial dysostosis--Patients--Biography.
Autobiographies.