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Uncommon voyage : parenting children with special needs : a guidebook / by Laura Shapiro Kramer.

By: Material type: TextTextPublisher: [Pennsauken, New Jersey?] : BookBaby, [2017]Copyright date: ©2017Edition: First editionDescription: 166 pages ; 23 cmContent type:
  • text
Media type:
  • unmediated
Carrier type:
  • volume
ISBN:
  • 9781483592725
  • 1483592723
Other title:
  • Parenting children with special needs : a guidebook
Subject(s):
Contents:
Ship's manifest -- A brief narrative of my personal journey -- Logging : using a journal to track and guide your journey -- Home port : becoming aware of your personal style -- Semaphore : shaping and sending the message of your child's situation -- Mapping : defining yourself as the parent of a special-needs -- Raising anchor : approaching research and advocacy on behalf of your child -- Ship's officers : embracing the joys and challenges in an intimate relationship as parents of a special needs child -- Traveling companions : determining the individuals and therapies to take on board -- Course correction : transforming self on both personal and professional levels -- All hands on deck : latching on to what you can do on your own right now -- Shipmates : meeting the challenges for siblings and special needs children -- Naval academy : accessing education and appropriate services for your child -- Anchors and wings : enlarging your child's world to encourage freedom and build self-esteem -- Storms at sea : confronting universal challenges : financial considerations, transitions of caregivers, therapists, and doctors, and the place of faith -- Restoring : drawing on life experiences for the tools to restore yourself -- Lifesavers : ten tried and true moorings to latch on to -- Afterword: "The only failure is not trying" -- Appendix: What I learned off the main course -- Appendix: A-Z : detailed descriptions of therapies and methodologies referenced in the book including links for further learning.
Summary: "Kramer, author of a 1997 book (also titled Uncommon Voyage) that recounts her struggles to find alternative therapies to treat her son's cerebral palsy, returns with a guidebook to help parents cope with the burdens and joys of raising a special-needs child. As she explains to new readers, after her son, Seth, was diagnosed with cerebral palsy, she found herself dissatisfied with what conventional medicine was offering and thus sought out new treatments. Throughout this new book, Kramer's experience and empathy shine through. Parents are encouraged to recognize that they are experts on their own children and that they should feel confident in their own knowledge. There is ample guidance regarding finding the help your child needs as well as an extensive resource section. Kramer also offers practical advice to parents on how to prevent their children's needs from consuming them. The concern and respect Kramer shows for the children of her readers and the advice she gives to parents about their children are informed by her son's willingness to speak for himself in a world uncomfortable with disabilities. This is a well-thought-out guide for parents that provides a flexible and compassionate approach to learning how best to help your child and yourself."--BookLife, April 2017.
Holdings
Item type Home library Collection Call number Materials specified Status Date due Barcode Item holds
Children's Book Children's Book Main Library Parent/Teacher Resource Collection-Children's 618.9283 K89 Available 33111008950079
Total holds: 0

Enhanced descriptions from Syndetics:

I developed this guidebook and organized the chapters based on the different aspects of being the parent of a special-needs child. Each chapter offers Navigation Points marked by compasses, and lighthouses illuminating Laura's Insights. In this edition of the book, I consider those universal and recurring questions and weave them into a practical guide. I made this edition of Uncommon Voyage a vehicle for your story, your voyage--how you see it, tell it, and are informed by it. I lay the groundwork in a brief narrative that describes my personal journey. I conceived the voyage in nautical terms thinking about a ship's fulcrum--how the shifts in a family's life are like the swinging pieces of a mobile, relocating to attain balance like a vessel rocking on the sea. As changes come along, we continually recalibrate our internal and external compasses to balance and to be able to pivot when necessary. Uncommon Voyage does not address individual conditions. I am relating to our universal experience. No matter the diagnosis--autism to schizophrenia to cerebral palsy--some things belong to all of us. Shock, ambivalence, chafing between doing too much and doing too little, grief, worry, guilt, living with shattered dreams--we have common experience even within the differences. I hope there is enough here to help you feel less alone while you fight to give your child the best chance at a future of promise and discovery. The miracles are not what you expect but they are there.

"Kramer, author of a 1997 book (also titled Uncommon Voyage) that recounts her struggles to find alternative therapies to treat her son's cerebral palsy, returns with a guidebook to help parents cope with the burdens and joys of raising a special-needs child. As she explains to new readers, after her son, Seth, was diagnosed with cerebral palsy, she found herself dissatisfied with what conventional medicine was offering and thus sought out new treatments. Throughout this new book, Kramer's experience and empathy shine through. Parents are encouraged to recognize that they are experts on their own children and that they should feel confident in their own knowledge. There is ample guidance regarding finding the help your child needs as well as an extensive resource section. Kramer also offers practical advice to parents on how to prevent their children's needs from consuming them. The concern and respect Kramer shows for the children of her readers and the advice she gives to parents about their children are informed by her son's willingness to speak for himself in a world uncomfortable with disabilities. This is a well-thought-out guide for parents that provides a flexible and compassionate approach to learning how best to help your child and yourself."--BookLife, April 2017.

Includes bibliographical references (pages 155-162) and index.

Ship's manifest -- A brief narrative of my personal journey -- Logging : using a journal to track and guide your journey -- Home port : becoming aware of your personal style -- Semaphore : shaping and sending the message of your child's situation -- Mapping : defining yourself as the parent of a special-needs -- Raising anchor : approaching research and advocacy on behalf of your child -- Ship's officers : embracing the joys and challenges in an intimate relationship as parents of a special needs child -- Traveling companions : determining the individuals and therapies to take on board -- Course correction : transforming self on both personal and professional levels -- All hands on deck : latching on to what you can do on your own right now -- Shipmates : meeting the challenges for siblings and special needs children -- Naval academy : accessing education and appropriate services for your child -- Anchors and wings : enlarging your child's world to encourage freedom and build self-esteem -- Storms at sea : confronting universal challenges : financial considerations, transitions of caregivers, therapists, and doctors, and the place of faith -- Restoring : drawing on life experiences for the tools to restore yourself -- Lifesavers : ten tried and true moorings to latch on to -- Afterword: "The only failure is not trying" -- Appendix: What I learned off the main course -- Appendix: A-Z : detailed descriptions of therapies and methodologies referenced in the book including links for further learning.

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