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Everything no one tells you about parenting a disabled child : your guide to the essential systems, services, and supports / Kelley Coleman.

By: Material type: TextTextPublisher: New York : Hachette Go Books, 2024Edition: First editionDescription: ix, 291 pages : illustrations ; 23 cmContent type:
  • text
Media type:
  • unmediated
Carrier type:
  • volume
ISBN:
  • 0306831708
  • 9780306831706
Subject(s): Genre/Form:
Contents:
Introduction -- Everything no one tells you about getting comfortable with disability -- Everything no one tells you about diagnosis -- Everything no one tells you about working with your medical team -- Everything no one tells you about therapies -- Everything no one tells you about insurance and government benefits -- Everything no one tells you about individualized education programs (IEPs) -- Everything no one tells you about school -- Everything no one tells you about disability rights and advocacy -- Everything no one tells you about financial planning and future care plans -- Everything no one tells you about inclusion in your community -- Everything no one tells you about what this looks like for you as a parent caregiver -- Conclusion -- Appendix -- Acknowledgments -- About the author.
Summary: "The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver"-- Provided by publisher.
Holdings
Item type Home library Collection Shelving location Call number Materials specified Status Date due Barcode Item holds
Adult Book Adult Book Dr. James Carlson Library NonFiction New 649.151 C692 Available 33111011129505
Adult Book Adult Book Main Library NonFiction New 649.151 C692 Available 33111011345952
Adult Book Adult Book Northport Library NonFiction New 649.151 C692 Available 33111011158280
Total holds: 0

Enhanced descriptions from Syndetics:

The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver.

For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child's success. Over and over, parents are being asked to reinvent the exact same wheels.

According to the CDC, "Every 4 ½ minutes a baby is born with a birth defect in the United States." That's 1 in 33. There's no handbook for how to do this. Until now.

Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports gives parents the tools to conquer the stuff , so that they can spend less time filling out forms, and more time loving their children exactly as they are. With over a decade of experience navigating these systems for her own child, author Kelley Coleman presents key information, templates, and wisdom alongside practical advice from over 40 experts, covering topics such as diagnosis, working with your medical team, insurance, financial planning, disability rights and advocacy, and individualized education plans. Everything No One Tells You About Parenting a Disabled Child gives parents the tools they need to stop wasting unnecessary time, money, and stress. If you need to know how to actually do the things, this book is for you.

Introduction -- Everything no one tells you about getting comfortable with disability -- Everything no one tells you about diagnosis -- Everything no one tells you about working with your medical team -- Everything no one tells you about therapies -- Everything no one tells you about insurance and government benefits -- Everything no one tells you about individualized education programs (IEPs) -- Everything no one tells you about school -- Everything no one tells you about disability rights and advocacy -- Everything no one tells you about financial planning and future care plans -- Everything no one tells you about inclusion in your community -- Everything no one tells you about what this looks like for you as a parent caregiver -- Conclusion -- Appendix -- Acknowledgments -- About the author.

"The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver"-- Provided by publisher.

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