000			04450cam a2200433Ii 4500
001			ocn978289882
003			OCoLC
005			20180722224914.0
008			170318s2017 njuh 001 0deng d
040			_aBTCTA _beng _erda _cBTCTA _dBDX _dIUO _dJAI _dDAD _dOCLCF _dCPL _dNFG
020			_a9781483592725 _q(paperback)
020			_a1483592723 _q(paperback)
035			_a(OCoLC)978289882
043			_an-us---
092			_a618.9283 _bK89
049			_aNFGA
100	1		_aKramer, Laura Shapiro, _eauthor. _9337801
245	1	0	_aUncommon voyage : _bparenting children with special needs : a guidebook / _cby Laura Shapiro Kramer.
246	3	0	_aParenting children with special needs : _ba guidebook
250			_aFirst edition.
264		1	_a[Pennsauken, New Jersey?] : _bBookBaby, _c[2017]
264		4	_c©2017
300			_a166 pages ; _c23 cm
336			_atext _btxt _2rdacontent
337			_aunmediated _bn _2rdamedia
338			_avolume _bnc _2rdacarrier
520			_a"Kramer, author of a 1997 book (also titled Uncommon Voyage) that recounts her struggles to find alternative therapies to treat her son's cerebral palsy, returns with a guidebook to help parents cope with the burdens and joys of raising a special-needs child. As she explains to new readers, after her son, Seth, was diagnosed with cerebral palsy, she found herself dissatisfied with what conventional medicine was offering and thus sought out new treatments. Throughout this new book, Kramer's experience and empathy shine through. Parents are encouraged to recognize that they are experts on their own children and that they should feel confident in their own knowledge. There is ample guidance regarding finding the help your child needs as well as an extensive resource section. Kramer also offers practical advice to parents on how to prevent their children's needs from consuming them. The concern and respect Kramer shows for the children of her readers and the advice she gives to parents about their children are informed by her son's willingness to speak for himself in a world uncomfortable with disabilities. This is a well-thought-out guide for parents that provides a flexible and compassionate approach to learning how best to help your child and yourself."--BookLife, April 2017.
504			_aIncludes bibliographical references (pages 155-162) and index.
505	0		_aShip's manifest -- A brief narrative of my personal journey -- Logging : using a journal to track and guide your journey -- Home port : becoming aware of your personal style -- Semaphore : shaping and sending the message of your child's situation -- Mapping : defining yourself as the parent of a special-needs -- Raising anchor : approaching research and advocacy on behalf of your child -- Ship's officers : embracing the joys and challenges in an intimate relationship as parents of a special needs child -- Traveling companions : determining the individuals and therapies to take on board -- Course correction : transforming self on both personal and professional levels -- All hands on deck : latching on to what you can do on your own right now -- Shipmates : meeting the challenges for siblings and special needs children -- Naval academy : accessing education and appropriate services for your child -- Anchors and wings : enlarging your child's world to encourage freedom and build self-esteem -- Storms at sea : confronting universal challenges : financial considerations, transitions of caregivers, therapists, and doctors, and the place of faith -- Restoring : drawing on life experiences for the tools to restore yourself -- Lifesavers : ten tried and true moorings to latch on to -- Afterword: "The only failure is not trying" -- Appendix: What I learned off the main course -- Appendix: A-Z : detailed descriptions of therapies and methodologies referenced in the book including links for further learning.
650		0	_aParents of children with disabilities. _9164309
650		0	_aParents of children with disabilities _zUnited States _vBiography. _946863
600	1	0	_aKramer, Laura Shapiro _xFamily. _9337802
600	1	0	_aKramer, Seth _c(Cerebral palsy patient) _xHealth. _9337803
650		0	_aChildren with disabilities _xCare. _9193221
650		0	_aChildren with disabilities _xCare _vCase studies. _9337804
650		0	_aCerebral palsied children _zUnited States _vBiography. _9337805
650		0	_aCerebral palsy _vCase studies. _9337806
994			_aC0 _bNFG
999			_c257546 _d257546