000 02628cam a2200493 i 4500
001 on1144767308
003 OCoLC
005 20220725165228.0
008 201229t20212021nyu j b 000 0aeng
010 _a 2020053393
015 _aGBC1J9231
_2bnb
016 7 _a020407219
_2Uk
020 _a9780374314071
_qhardcover
020 _a0374314071
_qhardcover
020 _z9780374314095
020 _z0374314098
035 _a(OCoLC)1144767308
_z(OCoLC)1264107074
_z(OCoLC)1295010815
040 _aDLC
_beng
_erda
_cDLC
_dBDX
_dYDX
_dOCLCO
_dOCLCF
_dGK8
_dOCLCO
_dOCO
_dILC
_dJQM
_dMZG
_dUKMGB
_dIEB
_dOCL
_dOCLCO
_dANK
_dYDX
_dOCLCA
_dPRN
_dVP@
_dMUO
_dOCLCO
_dOCLCQ
_dEHH
_dOCLCO
_dCTU
_dZAQ
_dNFG
042 _apcc
_alcac
049 _aNFGA
092 _aHENLEY, A.
_bH514
100 1 _aHenley, Ariel,
_d1991-
_eauthor.
245 1 2 _aA face for Picasso :
_bcoming of age with Crouzon syndrome /
_cAriel Henley.
246 3 0 _aComing of age with Crouzon syndrome
250 _aFirst edition.
264 1 _aNew York :
_bFarrar Straus Giroux,
_c2021.
264 4 _c©2021
300 _a378 pages ;
_c22 cm
336 _atext
_btxt
_2rdacontent
337 _aunmediated
_bn
_2rdamedia
338 _avolume
_bnc
_2rdacarrier
504 _aIncludes bibliographical references.
520 _a"A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"--
520 _aAt only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket
521 _aAges 12-18
_bFarrar Straus Giroux Books for Young Readers.
521 _aGrades 10-12
_bFarrar Straus Giroux Books for Young Readers.
586 _aSchneider Family Honor Book, Teen, 2022
600 1 0 _aHenley, Ariel,
_d1991-
_xHealth
_vJuvenile literature.
600 1 0 _aHenley, Ariel,
_d1991-
_xHealth.
650 0 _aCraniofacial dysostosis
_xPatients
_vBiography
_vJuvenile literature.
650 0 _aCraniofacial dysostosis
_xPatients
_vBiography.
655 7 _aAutobiographies.
_2lcgft
_9728
942 _2ddc
_cTBOOK
999 _c350620
_d350620