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A face for Picasso : coming of age with Crouzon syndrome / Ariel Henley.

By: Material type: TextTextPublisher: New York : Farrar Straus Giroux, 2021Copyright date: ©2021Edition: First editionDescription: 378 pages ; 22 cmContent type:
  • text
Media type:
  • unmediated
Carrier type:
  • volume
ISBN:
  • 9780374314071
  • 0374314071
Other title:
  • Coming of age with Crouzon syndrome
Subject(s): Genre/Form: Awards:
  • Schneider Family Honor Book, Teen, 2022
Summary: "A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"--Summary: At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket
List(s) this item appears in: Disability Pride Month | YA NonFiction
Holdings
Item type Home library Collection Call number Materials specified Status Date due Barcode Item holds
YA Book YA Book Main Library YA NonFiction HENLEY, A. H514 Available 33111010857825
Total holds: 0

Enhanced descriptions from Syndetics:

A Schneider Family Book Award Honor Book for Teens

"Raw and unflinching . . . A must-read!" --Marieke Nijkamp, #1 New York Times -bestselling author of This Is Where It Ends

"[It] cuts to the heart of our bogus ideas of beauty." -Scott Westerfeld, #1 New York Times -bestselling author of Uglies


I am ugly. There's a mathematical equation to prove it.

At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.

Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.

Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.

Includes bibliographical references.

"A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"--

At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket

Ages 12-18 Farrar Straus Giroux Books for Young Readers.

Grades 10-12 Farrar Straus Giroux Books for Young Readers.

Schneider Family Honor Book, Teen, 2022

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